Providing education, support, advocacy, and promoting research
for CTX patients, their families, and medical professionals
who treat and study this rare disease.
Unlock CTX PFDD Meeting
Supporting Organizations
Thank you to our partner organizations for their support and promotion of the Unlock CTX PFDD Initiative:
Alex, The Leukodystrophy Charity
European Leukodystrophies Association
Hunter’s Hope Foundation
Leukodystrophy Australia
Leukodystrophy Resource and Research Organisation Inc. (LRRO)
National Organization for Rare Disorders (NORD)
Spanish CTX Association (AEXCT)
Thank you to these generous sponsors for their unrestricted educational grants in support of the Unlock CTX PFDD initiative:
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Support the CTX Alliance
1586 Sumneytown Pike
PO Box 1322
Kulpsville, PA 19443
info@ctxalliance.org
Latest CTX Articles
- Apparent underdiagnosis of Cerebrotendinous Xanthomatosis revealed by analysis of ~60,000 human exomes November 18, 2021
- Cerebrotendinous Xanthomatosis September 13, 2021
- Epidemiology, diagnosis, and treatment of cerebrotendinous xanthomatosis (CTX) August 27, 2021