Providing education, support, advocacy, and promoting research
for CTX patients, their families, and medical professionals
who treat and study this rare disease.
The CTX Alliance’s mission is to support, educate, and provide a voice for CTX patients and their caregivers as we work toward a cure. Our purpose is to provide education, support, advocacy and promote research for patients affected with Cerebrotendinous Xanthomatosis (CTX), their families and medical professionals who treat and study this rare disease.
The CTX Alliance is a registered public charity under the Internal Revenue Code Section 501 (c)(3). Our tax identification number is 87-1964096.
Join our mailing list to receive information and news as we begin to gather and expand the CTX community.