Providing education, support, advocacy, and promoting research
for CTX patients, their families, and medical professionals
who treat and study this rare disease.
There are many local resources that may be able to help. Consider reaching out to your local churches or service organizations such as Lions Club, Rotary Club, Elks Club, Moose Club, or Kiwanis Club with your story. You may be able to secure some support from the community in which you reside.
Join our mailing list to receive information and news as we begin to gather and expand the CTX community.
1586 Sumneytown Pike
PO Box 1322
Kulpsville, PA 19443