Providing education, support, advocacy, and promoting research
for CTX patients, their families, and medical professionals
who treat and study this rare disease.
Meeting Summary Coming Soon
Thank you for joining us at the 2025 CTX International Workshop in Kyoto, Japan. We are grateful to all the physicians, researchers, patients, advocates, and industry partners who came together to share knowledge and strengthen collaborations.
A full summary of the discussions, updates, and next steps from the workshop will be posted here soon. The CTX Alliance looks forward to building on the ideas and connections formed in Kyoto to continue advancing CTX research and patient care.
Please check back shortly for details and resources from this important meeting.
