Providing education, support, advocacy, and promoting research
for CTX patients, their families, and medical professionals
who treat and study this rare disease.
ULF National Conference 2025
Each year, the CTX Alliance hosts a half-day patient and family meeting during the ULF Family Conference. This gathering provides a valuable opportunity for patients, families, and researchers to come together, hear informative presentations, and build connections for ongoing support. It’s a welcoming space to share experiences, learn from experts, and strengthen the CTX community.
2025 Agenda Coming Soon.
Join The CTX Alliance
Join our mailing list to receive information and news as we begin to gather and expand the CTX community.
Support the CTX Alliance
1586 Sumneytown Pike
PO Box 1322
Kulpsville, PA 19443
info@ctxalliance.org
Latest CTX Articles
- Allelic prevalence and geographic distribution of cerebrotendinous xanthomatosis March 17, 2025
- Chenodeoxycholic acid (CDCA) treatment during pregnancy in women with cerebrotendinous xanthomatosis (CTX): Lessons learned from 19 pregnancies March 17, 2025
- Cerebrotendinous Xanthomatosis occurs at high frequency in Ashkenazi Jews March 17, 2025