CTX Awareness Day – September 17, 2025

Proclamation Toolkit & Instructions

Step 1: Click “enable editing” at the top of the “CTX Proclamation Letter” file

Step 2: On the first page, the cover letter, fill in the yellow highlighted sections with the name of a patient or family affected by CTX

Step 3: Fill in the name of your state in all three sections of the proclamation letter (pages 2 & 3)

Step 4: Unhighlight each of those areas so they appear white

Step 5: Using the “CTX Proclamation Letters by State-hyperlinks” document, click on the hyperlink for your respective state, this will bring you to a form where you will need to enter basic personal information.  This is necessary because proclamations must be submitted by state residents.

Step 6: Follow prompts to submit the proclamation letter and cover letter – you may be able to save all three pages as one document and upload both items together or need to save and upload the cover letter (page 1) and the proclamation (pages 2 & 3) separately.

Download our sample letter to send to your representatives.

CTX Proclamation Letter (final)

Quick List of States and Links